Personal reflections and practical insights on living with ARVC. From lifestyle changes and emerging research to navigating the healthcare system

My day at a heart transplant hospital

Yesterday was my first trip to a heart transplant hospital. This post discusses my experiences, and my personal understanding from the information I was given. It is not medical advice. Please speak to a Doctor if you need advice. My name is Rachel and I have arrythmogenic right ventricular cardiomyopathy

Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) & Me

Hello and welcome. My name is Rachel, and I’m delighted to welcome you to my new publication, ARVC & Me. I’ve started this publication because I have been living with ARVC for some time, and my condition has progressed significantly. It has taken me years to truly understand